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X-ORIGINAL-URL:https://pmsf.org/
X-WR-CALNAME:Phelan-McDermid Syndrome Foundation
X-WR-CALDESC:The support you need today, the treatments and cures you're counting on tomorrow.
X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
X-LIC-LOCATION:America/New_York
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TZNAME:EDT
DTSTART:20260308T030000
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TZNAME:EST
DTSTART:20261101T010000
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UID:MEC-339d3905144e063a03c4f0fe26912927@pmsf.org
DTSTART;TZID=America/New_York:20260429T220000
DTEND;TZID=America/New_York:20260429T230000
DTSTAMP:20260427T133936Z
CREATED:20260427
LAST-MODIFIED:20260427
PRIORITY:5
SEQUENCE:6
TRANSP:OPAQUE
SUMMARY:Jaguar Gene Therapy’s Community Webinar
DESCRIPTION:Jaguar Gene Therapy is hosting a no-cost informational webinar introducing a new natural history study for individuals aged 2-30 years old with Phelan-McDermid syndrome. This session is designed for caregivers who want to learn more about the study goals, eligibility criteria, participation expectations, and how this research may help improve understanding of developmental changes over time.\nWhat to expect\n\nOverview of the study and its purpose\nParticipation requirements and timeline\nEligibility considerations\nQ&A with the research team\n\nWhether you’re interested in possibly participating or simply want to stay informed, Jaguar welcomes you to join by registering at https://linktr.ee/pmscaregiverstudy.\n
URL:https://pmsf.org/events/jaguar-gene-therapys-community-webinar-816/
ORGANIZER;CN=Lauren Schmitt:MAILTO:
CATEGORIES:Front Page,Front Page Event,Research
ATTACH;FMTTYPE=image/png:https://pmsf.org/wp-content/uploads/2026/04/Untitled-design-21.png
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