2026 PMSF Family Conference

Presented by Neuren Pharmaceuticals

The Climb We Made Together

From July 15–18, 2026, the Phelan-McDermid syndrome community gathered in Aurora, Colorado, for the largest PMSF Family Conference in our organization’s history.

Families and individuals with Phelan-McDermid syndrome joined researchers, clinicians, industry partners, sponsors, exhibitors, and volunteers for four days of learning, collaboration, connection, and hope.

The conference featured updates on the latest Phelan-McDermid syndrome research, the Natural History Study, emerging therapeutic programs, clinical care, and practical resources for families. Support groups, family panels, scientific posters, and sessions for parents and extended family members created opportunities to share experiences and build meaningful relationships.

One of the conference’s most important scientific events was a dedicated Summit focused on loss of skills, regression, and neuropsychiatric illness in Phelan-McDermid syndrome. Leading international experts discussed current knowledge, critical research gaps, and the next steps needed to improve understanding and care.

Beyond the educational program, our community reconnected with longtime friends, welcomed new families, shared meals, celebrated together, and experienced what it means to have a Rope Team beside us.

Watch the Conference Sessions

Registered attendees can access recordings of available sessions through the 2026 Virtual Conference Center.

Session recordings will be available to the entire PMSF community soon.

Thank You

We are deeply grateful to every family, speaker, researcher, clinician, volunteer, sponsor, exhibitor, and partner who made the 2026 PMSF Family Conference possible.

The conference was proudly presented by Neuren Pharmaceuticals, with Platinum sponsorship from PYC Therapeutics and Gold sponsorship from Jaguar Gene Therapy and Lug. We thank all our sponsors for investing in this community and helping advance progress in research, care, advocacy, and family support.