Volunteer

Share Your Talents

There is often something therapeutic about contributing to a great cause to help drive change and conquer what can seem insurmountable. We have witnessed the power of the passion of our community through advocacy events, sharing stories, creating fundraising events and just being present for one another. 

The Phelan-McDermid Syndrome Foundation (PMSF ) is growing quickly and there are new projects and initiatives throughout the year. There are many ways you can volunteer your time and skills to help and a few examples are provided below. We welcome volunteers from around the world. Our office staff works with families, volunteers, the Board of Directors, researchers and other stakeholders to accomplish our goals.

Volunteer Form

Share your skills, interests, and talent! Even if you are unsure how you can help, but would like more information, complete the form. When our needs match your interests, we will be in touch.

If you have questions, comments, and/or suggestions about volunteer opportunities, contact us at info@pmsf.org.

Volunteer Interest

Share your skills, interests, and talent! Even if you are unsure how you can help, but would like more information,  contact us at info@pmsf.org.

Volunteer Possibilities

Committees

PMSF Parent Action Committee: rotating parent advisors that represent the diverse PMS patient community​​

Awareness

Do your part to promote PMS and the foundation in your community.

Fundraisers

Check out our Fundraising page and Upcoming Events calendar for opportunities to participate​​

Special Projects

Endless opportunities to improve the PMSF, including communications and operations projects​

Events Calendar

Monthly Weekly Daily List Grid Tile
May 2026

Pathways to Progress: Regression & Loss of Skills

Make your voice heard! In 2026, Pathways has evolved into a collaborative program designed to ensure community experiences directly shape family resources, clinical guides, research initiatives, and programming, such as conference sessions. Join monthly virtual discussions focused on key topics identified by the community: – May: Regression and loss of skills – June: Neuropsychiatric illness […]
26 May
1:00 pm - 2:30 pm
July 2026

2026 PMSF Family Conference

The Climb We Make Together - Welcome to the 2026 PMSF Family Conference!PMSF is excited to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community. Over four incredible days, you will connect with other families, engage directly with researchers and clinicians, and find hope in the latest advancements in care and treatment.
15 - 19 Jul
8:00 am - 6:00 pm
Gaylord Rockies Resort & convention Center
6700 N Gaylord Rockies Blvd, Aurora, CO 80019
October 2026

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
December 2026

2026 Giving Tuesday

Giving Tuesday is a global day of generosity held each year on the Tuesday after Thanksgiving. It’s a time when individuals, families, and organizations come together to support causes they care about through donations, volunteering, and advocacy. For the Phelan-McDermid Syndrome Foundation, Giving Tuesday is an opportunity to rally the community, raise critical funds for […]
01 Dec
All Day
October 2027

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2028

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2029

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2030

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2031

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2032

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2033

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2034

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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