Hi, I’m Bill Kress. I turned 41 in February and in the same month received a diagnosis of Phelan-McDermid Syndrome

Katherine Ellis shares her thoughts on how growing up with Andrew, her brother with Phelan-McDermid syndrome, has changed their family

I live in Lizzy’s World. It is not quite the same world everyone else lives in. My world revolves around

As told by her mother, Bonnie Fly. How do you tell the story of someone who has no words? As

We lived in Vienna and Madrid, a bit in London and Zurich, a few months in Milan. We thought we

I just turned 45 this year and up until now I have been the oldest known case with Phelan-McDermid Syndrome.

I can’t be angry at you. I can’t be angry at you because you don’t know any better. You are

Our Princess This is the story of our daughter who is 22 years old. Her name is Emilie and she

Kyle Thorson was born in Salt Lake City Utah on the 9th day of the 9th month in 1993. When

Our “Kit Man!” My PMS story starts in March, 1993, when my son Kit was 15 months old. Kit was

Anneli’s first cry came 8 weeks too early. We were ready to leave for our last holidays on our own

Brave and Beautiful Bella is four years old. She loves music, finger plays, and the book Chicka Chicka Boom Boom

It was an otherwise normal workday in mid-October of 2012 when my cell phone vibrated on the desk. I had

So Many Questions. How can I explain all this life in only one page??? I could write a book… Anyway,

Olivia is an 8 year old, fun-loving and happy little girl residing in central New Jersey with her mom Taryn,

When thinking about writing this, as Jack’s Mother, I was in a dilemma. Should I, would I, or mostly…could I?