Events

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May 2026

Pathways to Progress: Regression & Loss of Skills

Make your voice heard! In 2026, Pathways has evolved into a collaborative program designed to ensure community experiences directly shape family resources, clinical guides, research initiatives, and programming, such as conference sessions. Join monthly virtual discussions focused on key topics identified by the community: – May: Regression and loss of skills – June: Neuropsychiatric illness […]
26 May
1:00 pm - 2:30 pm
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July 2026

2026 PMSF Family Conference

The Climb We Make Together - Welcome to the 2026 PMSF Family Conference!PMSF is excited to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community. Over four incredible days, you will connect with other families, engage directly with researchers and clinicians, and find hope in the latest advancements in care and treatment.
15 - 19 Jul
8:00 am - 6:00 pm
Gaylord Rockies Resort & convention Center
6700 N Gaylord Rockies Blvd, Aurora, CO 80019
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October 2026

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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December 2026

2026 Giving Tuesday

Giving Tuesday is a global day of generosity held each year on the Tuesday after Thanksgiving. It’s a time when individuals, families, and organizations come together to support causes they care about through donations, volunteering, and advocacy. For the Phelan-McDermid Syndrome Foundation, Giving Tuesday is an opportunity to rally the community, raise critical funds for […]
01 Dec
All Day
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October 2027

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2028

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2029

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2030

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2031

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2032

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2033

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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October 2034

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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