Registration is open for our third support group topic, Coping With Neuropsychiatric Episodes. This group specifically focuses on supporting caregivers of people with Phelan-McDermid syndrome who have developed new psychiatric or behavioral problems or marked loss of skills in their teen or adult years.
You can read more about what neuropsychiatric illness can look like in individuals with Phelan-McDermid syndrome here if you scroll down to “Information For PMS Parents”.
Our primary goal is to create a safe and empathetic environment where caregivers can process their difficult emotions with other caregivers who understand the unique challenges associated with neuropsychiatric illness.
If you’re seeking further information about neuropsychiatric illness or require assistance in managing these conditions, please don’t hesitate to reach out to Carla D’Imperio via email. Carla is dedicated to helping you access the appropriate resources that can provide guidance and support.
This 90-minute group will meet monthly through November, with the first meeting opportunity on Tuesday, August 29th at 5pm EST. Dr. Al Freedman, Ph.D will facilitate this group with support from Kiley Richards, LISW. Please note that the sessions are in English.
Please email our Family Support Specialist, Carla D’Imperio (carla@pmsf.org), for information about upcoming group meetings.
What to expect from the “Coping With Neuropsychiatric Episodes” Support Group…
- Tailored to the needs and interests of the group, the topics will be customized to ensure meaningful discussions.
- Sharing in the group is completely optional, allowing individuals to participate at their own pace and comfort level.
- Participants have the freedom to choose whether or not to have their camera on during the group sessions.
- These support groups serve as a valuable complement to clinical services, providing additional emotional support and understanding.
- The focus of the groups is on fostering a supportive community, while the facilitators offer guidance rather than being Phelan-McDermid syndrome experts.