The Phelan-McDermid Syndrome Foundation Medical Advisors Issue Guidance on Important Treatment Considerations for PMS Patients
Our MAC recently issued two guidance documents which are linked below. You can print them out as needed.
The first document discusses Phelan-McDermid as related to ABA. Children with PMS may have a different response, and often require drills in order to maintain skills. If your insurance or school is trying to reduce hours, this may help.
The second guidance document addresses the use of certain types of medications for behavioral or psychiatric treatment that may in some cases exacerbate symptoms. This can also be useful as you try to navigate challenges in this area.
Click here to view the Behavioral Advisory
Click here to view the Medication Advisory
Click here to view all PMS medical advisories and potential medical issues in PMS.