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Registration Is Open: What to Know About the 2026 PMSF Family Conference

Registration Is Open: What to Know About the 2026 PMSF Family Conference

Registration is officially open for the 2026 PMSF Family Conference, The Climb We Make Together, Presented by Neuren Pharmaceuticals, and we’re…

Continue ReadingRegistration Is Open: What to Know About the 2026 PMSF Family Conference
Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit

Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit

Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit By: Meagan Hutchinson This week, I had the privilege of attending…

Continue ReadingTogether We Are Mighty: Attending the 2025 NORD Breakthrough Summit
A Year-End Gift: 2024 PMSF Family Conference Recordings Now Available

A Year-End Gift: 2024 PMSF Family Conference Recordings Now Available

As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…

Continue ReadingA Year-End Gift: 2024 PMSF Family Conference Recordings Now Available
2024 PMSF International Family Conference

2024 PMSF International Family Conference

by: Ronni Blumenthal, Phelan-McDermid Syndrome Foundation CEO.Save the Date for the 2024 Phelan-McDermid Syndrome Foundation International Family ConferenceWe are so excited…

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2024 PMSF International Family Conference Announcement

2024 PMSF International Family Conference Announcement

The PMSF International Family Conference was established in the year 2000 and has since been planned biennially on even years. As you know, COVID…

Continue Reading2024 PMSF International Family Conference Announcement

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Copyright © 2024 Phelan-McDermid Syndrome Foundation. All rights reserved. Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.

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