Team Matthew Luis
Florida Family Hosts Virtual Eventby Martha Castillo We are grateful that the Castillo Family host a yearly fundraiser in support of the…
Posts about creative fundraisers to inspire others to create their own fundraising event
Turner’s Tribe
We received Turner's diagnosis in June of 2019. He was 6 years old, and to say we were devastated at first…
Cecilia’s Advice
Cecilia’s Advice was born out of that deep commitment to fostering research and family support for the thousands of families worldwide affected by PMS.
Hope for 22q13 Gala
When our son Anthony was diagnosed back in July of 2015 at the age of 15 months, we were, as all…
Annie’s Golf Classic
Annie’s Golf Classic is a charity golf tournament that is held in the Dallas Ft. Worth area. Net proceeds of the…
Pie in the Face for Chase
The idea for our Pie in the Face for Chase event was born during the time that ALS ice bucket challenge…
Logan’s Heroes
Hello from Logan’s dad. We host a benefit called Logan’s Heroes. This is a benefit that evolves around a motorcycle cruise…
Jackson’s Trivia Night
Jackson’s Trivia night is in honor of our son Jackson who is 10 years old and was diagnosed with PMS in…
LoveforLola
The #LoveForLola legging fundraiser was a fun and creative way to raise awareness for Phelan-McDermid Syndrome. I designed the leggings with…
Riding for Carlie
By Rick Slater, Wichita KS. Our eldest granddaughter, Carlie, was diagnosed within her first year as being afflicted with Phelan-McDermid Syndrome…