NEW Quick Resource Cards
PMSF Releases the first in a series of Quick Resource Cards by Diane Linnehan, Director of Operations and Jenn Carter, Mom…
Family Fundraiser: Turner’s Tribe
by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…
Neuropsychiatric Conditions in PMS
Quick links to important information for families and clinicians about neuropsychiatric illness in PMS.
Family Support Update
There are some big things happening in the world of Family Support! Our Family Support Specialist, Carla D'Imperio, is working on improving our…
2024 PMSF International Family Conference Announcement
The PMSF International Family Conference was established in the year 2000 and has since been planned biennially on even years. As you know, COVID…
Welcome to our new Family Support Specialist
Phelan-McDermid Syndrome Foundation is excited to announce that Carla D’Imperio, MS has accepted the position of Family Support Specialist. Join us in welcoming Carla to the team!