A pilot study of Growth Hormone in children with Phelan-McDermid syndrome
Results from a study testing the safety and feasibility of using growth hormone (GH) as a treatment in children with Phelan-McDermid syndrome has just been published.
Information about the Phelan-McDermid Syndrome Foundation (PMSF)
Phelan-McDermid Syndrome Foundation Offers Travel Assistance for Clinical Research Studies
This Phelan-McDermid Syndrome Foundation Travel Assistance Program is designed to assist patients and families with the cost of travel expenses associated with the clinical research study regarding a Phelan-McDermid syndrome diagnosis.
PMSF Scientific Advisory Committee Revisits Definition of Phelan-McDermid Syndrome
The Phelan-McDermid Syndrome Foundation Scientific Advisory Committee has proposed a new classification system for Phelan-McDermid syndrome in an important new publication.
Phelan-McDermid Syndrome Website Update
by Diane Linnehan, PMSF Director of Operations The new PMSF website launched on August 11th! With the help of our amazing…
Team Matthew Luis
Florida Family Hosts Virtual Eventby Martha Castillo We are grateful that the Castillo Family host a yearly fundraiser in support of the…
Phelan-Lucky Success
by Jen Randolph Thank you to everyone who helped to make this St. Patrick’s Day another incredible day of awareness for…
PMSF Announces Changes to Leadership
Effective February, 2021, Joe Sammartino has resigned from the board after four years of dedicated service. Joe is focusing on and enjoying time…
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