NNZ-2591 Phase 2 Publication
By Lauren Schmitt, PhDJanuary 12, 2026With Neuren's Phase 3 clinical trial for NNZ-2591 now open for enrollment, the recent publication of…
Use this for any post that you want on the home page
Registration Is Open: What to Know About the 2026 PMSF Family Conference
Registration is officially open for the 2026 PMSF Family Conference, The Climb We Make Together, Presented by Neuren Pharmaceuticals, and we’re…
Why Sharing Clinical Trial Experiences Can Harm Research
By: Lauren Schmitt, PhD, Chief Science Officer, PMSFDate: December 22, 2025 How Families Can Help Protect the Path to New Treatments…
Why Nutrition Matters in Phelan-McDermid Syndrome
Why Nutrition Matters in Phelan-McDermid Syndrome By: Meagan Hutchinson, Science & Research Administrator, Phelan-McDermid Syndrome FoundationDecember 18, 2025Nutrition plays a critical…
Neuren’s Phase 3 NNZ-2591 Trial for Phelan-McDermid Syndrome is Now Active!
Neuren’s Phase 3 NNZ-2591 Trial for Phelan-McDermid Syndrome is Now Active! by: Lauren Schmitt, PhDDate: December 15, 2025The Phelan-McDermid Syndrome Foundation is…
Updates on the PMS Natural History Study
Updates on the PMS Natural History Study By: Lauren Schmitt, PhD, Chief Science Officer, Phelan-McDermid Syndrome FoundationDecember 11, 2025 What is…
PMSF NAMES ROBBIE BAKER AS CHIEF EXECUTIVE OFFICER
Phelan-McDermid Syndrome Foundation Names Robbie Baker as Chief Executive Officer by: Denise Croden, President, Phelan-McDermid Syndrome FoundationWe are excited to share…
Because no family should walk this path alone
Giving Tuesday is December 2nd and we have some exciting news!
We surpassed our Giving Tuesday match and raised $77K (exact total to be posted later). We ope you feel the appreciation…
Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit
Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit By: Meagan Hutchinson This week, I had the privilege of attending…
Driving Research Breakthroughs
Driving Research Breakthroughs Funding research, treatments, and cures for Phelan-McDermid SyndromeThe Phelan-McDermid Syndrome Foundation is proud to launch Driving Research Breakthroughs,…