Clinic and Research Visit Ready: New PMSF Resources for Families
By Lauren Schmitt, PhDDate February 25, 2026Everyday, our families are taking their loved ones to clinic appointments, research visits, or under…
A collection of quick resources for certain medical and community use cases that help improve clinical care, awareness and engagement.
Why Nutrition Matters in Phelan-McDermid Syndrome
Why Nutrition Matters in Phelan-McDermid Syndrome By: Meagan Hutchinson, Science & Research Administrator, Phelan-McDermid Syndrome FoundationDecember 18, 2025Nutrition plays a critical…
Phelan-McDermid Syndrome 101
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.
Updates to Pharmacological Recommendations for the Management of Phelan-McDermid syndrome
We are excited to release updates to our Pharmacologic Recommendations, which were recently finalized by our Phelan-McDermid Syndrome Neuropsychiatric Consultation Group…
NEW Quick Resource Cards
PMSF Releases the first in a series of Quick Resource Cards by Diane Linnehan, Director of Operations and Jenn Carter, Mom…
Neuropsychiatric Conditions in PMS
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.