Medical Advisory: Understanding Mortality in Phelan-McDermid Syndrome
The Phelan-McDermid syndrome community has experienced profound grief and concern over the deaths of some of our beloved children and adults.…
The Phelan-McDermid syndrome community has experienced profound grief and concern over the deaths of some of our beloved children and adults.…
Join Us at the 2024 Phelan McDermid Syndrome Foundation Family Conference at the Radisson Blu at the Mall of America in Bloomington, MN, USA. You will find something for everyone in the Phelan-McDermid community! The conference will be attended by families, clinicians, researchers, therapists, and industry partners. The agenda is full of offerings in the three tracks titled CARE, CONNECT and CURE, ranging from research and science, clinical care and caregiver support topics that all help to improve the lives of those affected by Phelan-McDermid syndrome. There will be evening events, family outings, a sibling field trip, dance party, dinner, reception to help families and others connect. If you have questions, contact us at conference@pmsf.org
At the RADISSON BLU AT THE MALL OF AMERICA, BLOOMINGTON, MINNESOTA, USA, JULY 17-20, 2024: The PMSF Family Conference is three…