2025 Impact Report
In 2025, families found connection, care expanded, and research accelerated, bringing treatments and a cure closer than ever.
2024-2025 PMSF Financial Audit
The Phelan-McDermid Syndrome Foundation’s 2025 Independent Audit Report provides an objective assessment of the organization’s financial statements and internal controls.
2025 Form 990 Tax form
2025 PMSF 990 Tax Form
The Phelan-McDermid Syndrome Foundation (PMSF) is committed to transparency and responsible stewardship.
2026 PMSF Family Conference Prospectus
In July 2026, we are honored to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community. Over four powerful days on July 15–19, 2026, 700 attendees will come together with leading researchers, clinicians, industry partners, and advocates to learn, collaborate, and drive medical advancements fueling hope for our families.
PHELAN MCDERMID SYNDROME FOUNDATION NAMES ROBBIE BAKER AS CHIEF EXECUTIVE OFFICER
The Phelan McDermid Syndrome Foundation (PMSF) today announced the appointment of Robbie Baker, a seasoned nonprofit executive and successful fundraiser, as its new Chief Executive Officer.
PMSF Logo Style Guide
This document specifies the acceptable font and color usage for the official Phelan-McDermid Syndrome Foundation brand.
2023-2027 PMSF Strategic Framework
As the pre-eminent global organization for families affected by the rare genetic condition Phelan-McDermid syndrome, the Foundation has positioned itself to play a leading role in patient advocacy and family support and driving research breakthroughs.
Phelan-McDermid Fundraising Toolkit
2023 Fundraising Toolkit. Fundraising is the major lifeline of our organization. We rely on the generosity of donors, like you, to provide the funds necessary to achieve our goals of helping families, facilitating research, and creating awareness of Phelan-McDermid syndrome (PMS).