Newly Diagnosed Caregiver Support Group
The months following a Phelan-McDermid syndrome diagnosis can be very difficult for parents and caregivers. The “Support Group For the Newly Diagnosed Phelan-McDermid Syndrome Caregiver” is a closed support group for parents, guardians, and primary caregivers of Phelan-McDermid syndrome individuals who were diagnosed within the last twelve months. This group is intended to support our new families with the unique challenges associated with coping with a new Phelan-McDermid syndrome diagnosis.
Register by clicking here.
