Transistion, Life After High School
2017 PMSF Stanford Mini-symopsium
Best Clinical Practices in PMS
Presentation slides from the 2017 PMSF Stanford Mini-symopsium
Phelan-McDermid Syndrome Clinical Care Guidelines – English
The Clinical Care Guidelines infographic is a tool that can be used by patients to begin discussions with their own clinician. Please note that all cases of PMS are different and your doctor/clinician is the best resource to help you make clinical care decisions for your loved one.
Regression and Sleep Disturbances; 2017
2017 PMSF Stanford Mini-symopsium
Improving The IEP through Advocacy
How to improve your child's IEP objectives through effective advocacy, presented at the 2017 PMSF Stanford Mini-symopsium
Follow-up genetic Testing in English
A graphic explaining possible reqirements for follow-on genetic testing
Follow-up Genetico per la Sindrome di Phelan-McDermid – Italian
A graphic explaining possible reqirements for follow-on genetic testing
Seguimiento Genético en el Síndrome de Phelan-McDermid – Spanish
A graphic explaining possible reqirements for follow-on genetic testing
PMS Clinical Care Guidelines – Italian
The Clinical Care Guidelines infographic is a tool that can be used by patients to begin discussions with their own clinician. Please note that all cases of PMS are different and your doctor/clinician is the best resource to help you make clinical care decisions for your loved one.