We’re on the move—are you with us?
From May 13–25, 2025, the Phelan-McDermid Syndrome Foundation (PMSF) is launching our second Raising Hope Through Movement fundraiser—a 13-day peer-to-peer challenge where every movement matters. Whether you walk, wheel, ride, dance, scoot, rock, or roll, your effort helps raise awareness and critical funds for families affected by Phelan-McDermid syndrome.
However you move, you move us forward. 💚
What Is Raising Hope Through Movement?
Raising Hope Through Movement is a 13-day fundraiser where participants choose a movement that works for them and raise funds to support PMSF. Whether you move once or every day, it’s all about taking action and inspiring others.
Why We Move
PMSF is nearly 90% donor-funded, and campaigns like this directly support programs that matter:
- ✈️ Extension of the Natural History Study (NHS) and travel assistance for families participating in the NHS
- 🧪 Scientific research grants
- 🧡 New Family Support Program
- 👥 Caregiver Support Groups
- 📚 Educational webinars and resources
Together, we’re working to make today better and the future brighter—from diagnosis through to treatments and cures.
How to Get Involved
✅ Join a Team
Starting May 1, register here and choose the team that fits your connection:
Phelan-McDermid Syndrome Individual or Parent
PMSF Board Member
Family & Friends
✅ Set Up Your Fundraising Page
Use our Fundraising Toolkit to make it easy and personal.
✅ Pick Your Movement
Run a mile a day, dance for 13 minutes, rock for research—it’s your call!
✅ Invite Your Network
Ask friends, family, or coworkers to donate or join your team.
✅ Help Us Find Sponsors
Know a business that wants to do good? Share our Sponsorship Packet.
Important Dates
🟢 May 1 – Registration opens
🚀 May 13 – Movement & fundraising officially begin
⏳ May 25 – Last day to move & raise hope
Let’s Move the Dial Together
Raising Hope Through Movement is more than a fundraiser—it’s a statement of strength, unity, and hope. Every participant, every donation, every movement matters. We’re raising awareness, accelerating progress, and building a better future for the Phelan-McDermid syndrome community.
Ready to move for a mission?
👉 Register now and be part of the movement that’s changing lives.