Phelan-McDermid Syndrome 101
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.
Pathways Education Series
Please join us for our new Pathways Education Series of monthly webinars in 2025.
“First 100 Days”
Welcome to the “First 100 Days of your membership with the Phelan-McDermid Syndrome Foundation.
Caregiver Support Groups
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Winter Break Solutions
by: Carla D'Imperio, Director of Family Support.We gathered your ideas to help make the most of breaks from school and programs.We…
“First 100 Days” Program Updates
We started the "First 100 Days" program a year ago and have had 100 US families join our membership in that time. We are so happy to be able to provide our new families with this intensive, personal, and differentiated support.
Neuropsychiatric Support Program
We are very pleased to announce that the Foundation is bringing Dr. Tesi (Teresa) Kohlenberg on part time to assist our Family Support Specialist, Carla D’Imperio, in helping families whose loved ones have neuropsychiatric illness.
Neuropsychiatric Support Group Registration
Registration is open for our third support group topic, Coping With Neuropsychiatric Episodes. This support group will be open only to those caregivers in our community who have lost a child or adult with Phelan-McDermid syndrome.
Grief Support Group Registration
Registration is open for our first Phelan-McDermid Caregiver Support Group. We are thrilled to invite you to register for our new Caregiver Support Groups. These groups will be a time for Phelan-McDermid syndrome caregivers to share their experience in a welcoming and supportive group setting.