Ring Chromosome 22
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.
Protected: Ring Chromosome 22
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Protected: Family Gathering Ideas
Are you interested in taking the lead on planning a get-together for Phelan-McDermid syndrome families in your area of the United States? If you have an idea for a family gathering and you would like to plan it with support from our team, please fill out the form below and our Director of Family Support will reach out to you to help you get started.
Phelan-McDermid Syndrome 101
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.
Pathways Education Series
Please join us for our new Pathways Education Series of monthly webinars in 2025.
“First 100 Days”
Welcome to the “First 100 Days of your membership with the Phelan-McDermid Syndrome Foundation.
Caregiver Support Groups
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Winter Break Solutions
by: Carla D'Imperio, Director of Family Support.We gathered your ideas to help make the most of breaks from school and programs.We…
“First 100 Days” Program Updates
We started the "First 100 Days" program a year ago and have had 100 US families join our membership in that time. We are so happy to be able to provide our new families with this intensive, personal, and differentiated support.
Neuropsychiatric Support Program
We are very pleased to announce that the Foundation is bringing Dr. Tesi (Teresa) Kohlenberg on part time to assist our Family Support Specialist, Carla D’Imperio, in helping families whose loved ones have neuropsychiatric illness.