PMS Medical Advisory; Catatonia and NMS
Important Message from our Medical Advisory Committee November 7, 2022 From: Alex Kolevzon, MD, PMS MAC chairperson; William Bennett, Jr, MD,…
The Story of Bill Kress
Hi, I’m Bill Kress. I turned 41 in February and in the same month received a diagnosis of Phelan-McDermid Syndrome through…
CANDID Conference Resources
Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
PMSF Research Roundup: July 2022
Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
Welcome to our new Family Support Specialist
Phelan-McDermid Syndrome Foundation is excited to announce that Carla D’Imperio, MS has accepted the position of Family Support Specialist. Join us in welcoming Carla to the team!
PMSF Research Roundup: May 2022
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research?The Research Roundup is a…
PMSF Research Roundup: April 2022
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research? The Research Roundup is…
PMSF Research Roundup: March 2022
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research? The Research Roundup is…
Phelan-McDermid Syndrome Foundation Offers Travel Assistance for Clinical Research Studies
This Phelan-McDermid Syndrome Foundation Travel Assistance Program is designed to assist patients and families with the cost of travel expenses associated with the clinical research study regarding a Phelan-McDermid syndrome diagnosis.