Phelan-Lucky Success
by Jen Randolph Thank you to everyone who helped to make this St. Patrick’s Day another incredible day of awareness for…
Turner’s Tribe
We received Turner's diagnosis in June of 2019. He was 6 years old, and to say we were devastated at first…
Cecilia’s Advice
Cecilia’s Advice was born out of that deep commitment to fostering research and family support for the thousands of families worldwide affected by PMS.
TeamMatthewLuis
#TeamMatthewLuis When our sweet and beautiful five year old son, Matthew Luis Castillo, was diagnosed with Phelan McDermid Syndrome it was…
Living a Life of Rarity
Spotlight on Living with Phelan-McDermid syndrome.Many of our parents have chosen to express their truth through words and images on websites…
Grit and Grace
PMS mom and PMSF Regional REP, Jenn Carter, is creating an adventurous life with her family and sharing the raw truth…
Research Update
February 26, 2021Members of our research community have been asked to provide lay summaries that give a basic overview in clear…
Phelan-Lucky 2021
This year was the largest and most successful campaign that we have had to date.As February draws to a close, the…
PMSF Medical Advisory
The Phelan-McDermid Syndrome Foundation Medical Advisors Issue Guidance on Important Treatment Considerations for PMS Patients Our MAC recently issued two guidance documents…
Hope for 22q13 Gala
When our son Anthony was diagnosed back in July of 2015 at the age of 15 months, we were, as all…