Dallman-lab
University of Miami Researcher Wins Approval for Phelan-McDermid GI Research StudyUniversity of Miami researcher Julia Dallman recently announced that her lab's…
Intranasal Oxytocin Study Results
Pilot Study Finds Intranasal Oxytocin Does Not Improve Autism Symptoms in Children with PMS-- letter submitted by Alex Kolevzon, MD Clinical…
Team Matthew Luis
Florida Family Hosts Virtual Eventby Martha Castillo We are grateful that the Castillo Family host a yearly fundraiser in support of the…
Phelan-Lucky Success
by Jen Randolph Thank you to everyone who helped to make this St. Patrick’s Day another incredible day of awareness for…
Turner’s Tribe
We received Turner's diagnosis in June of 2019. He was 6 years old, and to say we were devastated at first…
Cecilia’s Advice
Cecilia’s Advice was born out of that deep commitment to fostering research and family support for the thousands of families worldwide affected by PMS.
TeamMatthewLuis
#TeamMatthewLuis When our sweet and beautiful five year old son, Matthew Luis Castillo, was diagnosed with Phelan McDermid Syndrome it was…
Living a Life of Rarity
Spotlight on Living with Phelan-McDermid syndrome.Many of our parents have chosen to express their truth through words and images on websites…
Grit and Grace
PMS mom and PMSF Regional REP, Jenn Carter, is creating an adventurous life with her family and sharing the raw truth…
Research Update
February 26, 2021Members of our research community have been asked to provide lay summaries that give a basic overview in clear…