Annie’s Golf Classic
Annie’s Golf Classic is a charity golf tournament that is held in the Dallas Ft. Worth area. Net proceeds of the…
Pie in the Face for Chase
The idea for our Pie in the Face for Chase event was born during the time that ALS ice bucket challenge…
Logan’s Heroes
Hello from Logan’s dad. We host a benefit called Logan’s Heroes. This is a benefit that evolves around a motorcycle cruise…
Jackson’s Trivia Night
Jackson’s Trivia night is in honor of our son Jackson who is 10 years old and was diagnosed with PMS in…
LoveforLola
The #LoveForLola legging fundraiser was a fun and creative way to raise awareness for Phelan-McDermid Syndrome. I designed the leggings with…
Riding for Carlie
By Rick Slater, Wichita KS. Our eldest granddaughter, Carlie, was diagnosed within her first year as being afflicted with Phelan-McDermid Syndrome…
PMSF Announces Changes to Leadership
Effective February, 2021, Joe Sammartino has resigned from the board after four years of dedicated service. Joe is focusing on and enjoying time…
Study on Phelan McDermid Syndrome
Seventy-five percent of individuals with Phelan-McDermid Syndrome have pure 22q deletions, which are either terminal or interstitial. A terminal deletion involves…
BIO Rare Disease Summit
BIO Rare Disease Summit by Tony Samuel The 2019 BIO Patient & Health Advocacy Summit in Washington D.C. brings together academia,…