Posts about legislative activities to advocate for those with Phelan-McDermid syndrome
Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
This Phelan-McDermid Syndrome Foundation Travel Assistance Program is designed to assist patients and families with the cost of travel expenses associated with the clinical research study regarding a Phelan-McDermid syndrome diagnosis.
https://youtu.be/NmZOnH7tpBk Punya is diagnosed with Phelan-Mcdermid syndrome and does not currently speak. Ananya, her sister, is dedicated to learning how Punya communicates…
by Diane Linnehan, PMSF Director of Operations The new PMSF website launched on August 11th! With the help of our amazing…
We are so thankful to Maria Punzo, who recently completed the Queens Half Marathon in honor of her nephew, John Welsh.…
PMS Mom Working @Stronger_for_Ben Chardell Buchanan, a Registered Dietitian Nutritionist and PMS mom to Ben help parents of children with…
#TeamMatthewLuis When our sweet and beautiful five year old son, Matthew Luis Castillo, was diagnosed with Phelan McDermid Syndrome it was…
Spotlight on Living with Phelan-McDermid syndrome.Many of our parents have chosen to express their truth through words and images on websites…
PMS mom and PMSF Regional REP, Jenn Carter, is creating an adventurous life with her family and sharing the raw truth…
This year was the largest and most successful campaign that we have had to date.As February draws to a close, the…
