BIO Rare Disease Summit
BIO Rare Disease Summit by Tony Samuel The 2019 BIO Patient & Health Advocacy Summit in Washington D.C. brings together academia,…
Posts about legislative activities to advocate for those with Phelan-McDermid syndrome
PMSF leads coalition to increase research
By Mark Vieth PMSF Legislative Advocacy Consultant/Sr. Vice President, Cavarrochi Ruscio Dennis Associates Gastrointestinal (GI) symptoms –such as constipation and reflux…
Bio Patient & Health Advocacy
By Tony Samuel, Father to Nadia Bio Patient & Health Advocacy Summit 2018 The 7th annual Bio Patient & Health Advocacy Summit…
Understanding Ryan
https://youtu.be/XudWvmnDwW4 Jul 24, 2017 Ryan is 1 of only 1500 people to be diagnosed with Phelan-McDermid syndrome. Many underestimate his intelligence due to…