Any time dependant activity of the PMSF, its members, or the rare community.
Are you interested in taking the lead on planning a get-together for Phelan-McDermid syndrome families in your area of the United States? If you have an idea for a family gathering and you would like to plan it with support from our team, please fill out the form below and our Director of Family Support will reach out to you to help you get started.
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…
Please join us for our new Pathways Education Series of monthly webinars in 2025.
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
by: Ronni Blumenthal, Phelan-McDermid Syndrome Foundation CEO.Save the Date for the 2024 Phelan-McDermid Syndrome Foundation International Family ConferenceWe are so excited…
Special thanks to Ronni Vestbie's family for this awesome Phelan Lucky photo! Friday, March 17th is St. Patrick's Day, the official…
by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…
Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
Phelan Lucky 2022 is an online campaign that takes place for a strict 22-day period—from Jan. 2, 2022, through Jan. 24, 2022! It’s also the only time of year to get your hands on the coveted “Phelan Lucky” T-shirt.
