A Year-End Gift: 2024 PMSF Family Conference Recordings Now Available
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…
Any time dependant activity of the PMSF, its members, or the rare community.
Pathways Education Series
Please join us for our new Pathways Education Series of monthly webinars in 2025.
Caregiver Support Groups
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
PHELAN LUCKY Sets Sights on $1 Million Goal
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
2024 PMSF International Family Conference
by: Ronni Blumenthal, Phelan-McDermid Syndrome Foundation CEO.Save the Date for the 2024 Phelan-McDermid Syndrome Foundation International Family ConferenceWe are so excited…
Get Ready for St. Patrick’s Day with Phelan Lucky
Special thanks to Ronni Vestbie's family for this awesome Phelan Lucky photo! Friday, March 17th is St. Patrick's Day, the official…
Family Fundraiser: Turner’s Tribe
by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…
CANDID Conference Resources
Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
Phelan Lucky 2022 Is Here!
Phelan Lucky 2022 is an online campaign that takes place for a strict 22-day period—from Jan. 2, 2022, through Jan. 24, 2022! It’s also the only time of year to get your hands on the coveted “Phelan Lucky” T-shirt.
Phelan-McDermid Syndrome Website Update
by Diane Linnehan, PMSF Director of Operations The new PMSF website launched on August 11th! With the help of our amazing…