Foundation – Page 2 – Phelan-McDermid Syndrome Foundation

Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit

Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit By: Meagan Hutchinson This week, I had the privilege of attending…

Driving Research Breakthroughs

Driving Research Breakthroughs Funding research, treatments, and cures for Phelan-McDermid SyndromeThe Phelan-McDermid Syndrome Foundation is proud to launch Driving Research Breakthroughs,…

SPACES Webinar Series Recap: Understanding Catatonia in Autism

SPACES Webinar Series Recap: Understanding Catatonia in Autism By Meagan HutchinsonPhelan-McDermid Syndrome Foundation proudly co-sponsored the six-part "Supporting People with Autism…

2025 Shannon O’Boyle Memorial Grant Awardee

We have exciting news to share with our Phelan-McDermid syndrome community! This year’s PMSF research grant will help drive groundbreaking science…

Passport to Progress: Diane Joins Conference in Barcelona for a New Era of PMSF and Our Global Community

By Diane Linnehan, COO & Interim CEO, PMSFDiane Linnehan, the Chief Operating Officer and co-interim Chief Executive Officer of the Phelan-McDermid…

From Awareness to Action: Advocacy for Our Phelan-McDermid Syndrome Community

This is a companion piece to our podcast episode, which we recommend listening to or viewing before reading! But if you…

Raising Hope Through Movement 2025

We’re on the move—are you with us?From May 13–25, 2025, the Phelan-McDermid Syndrome Foundation (PMSF) is launching our second Raising Hope…

2023 PMSF Grant Awardees – Round-Up

Over the past month, I’ve had the opportunity to interview each of our 2023 PMSF Grant Awardees for our podcast, The…

Updates to Pharmacological Recommendations for the Management of Phelan-McDermid syndrome

We are excited to release updates to our Pharmacologic Recommendations, which were recently finalized by our Phelan-McDermid Syndrome Neuropsychiatric Consultation Group…