Skip to content
  • 2026 Conference
  • CAREGIVER SUPPORT
  • QUICK RESOURCES
  • PODCAST
  • CONNECT: Family Support
    • New Diagnosis
    • Support Programs
      • Family Support
      • First 100 Days
      • Caregiver Support Groups
    • 2026 Conference
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid Syndrome?
    • How Phelan-McDermid Syndrome is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • Genetic Counselors
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities
      • Participation in Research
      • Clinical Trials in Phelan-McDermid Syndrome
    • Drugs In Development
    • For Research Partners
    • PMS DataHub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
  • Get Involved
    • Fundraise
    • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • News & Updates
  • Contact Us
  • CONNECT: Family Support
    • New Diagnosis
    • Support Programs
      • Family Support
      • First 100 Days
      • Caregiver Support Groups
    • 2026 Conference
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid Syndrome?
    • How Phelan-McDermid Syndrome is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • Genetic Counselors
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities
      • Participation in Research
      • Clinical Trials in Phelan-McDermid Syndrome
    • Drugs In Development
    • For Research Partners
    • PMS DataHub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
  • Get Involved
    • Fundraise
    • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • News & Updates
  • Contact Us
Join
Donate
  • 2026 Conference
  • CONNECT: Family Support
    • New Diagnosis
    • Programs
      • Family Support
      • “First 100 Days”
      • Caregiver Support Groups
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid syndrome?
    • How PMS is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • About Genetic Counseling
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities 
      • Participation in Research
      • Clinical Trials
    • Drugs In Development
    • For Research Partners
    • PMS Datahub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
    • PMSF News
    • Contact Us
  • Get Involved
    • Fundraise
      • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • Join
  • Donate
Raising Hope Through Movement 2025

Raising Hope Through Movement 2025

We’re on the move—are you with us?From May 13–25, 2025, the Phelan-McDermid Syndrome Foundation (PMSF) is launching our second Raising Hope…

Continue ReadingRaising Hope Through Movement 2025
Endure4Eden: A 24-Hour Golf Challenge to Support the Phelan-McDermid Syndrome Foundation

Endure4Eden: A 24-Hour Golf Challenge to Support the Phelan-McDermid Syndrome Foundation

We are excited to announce the upcoming Endure4Eden fundraiser, organized by Philip Robertson and his team, to support the Phelan-McDermid Syndrome…

Continue ReadingEndure4Eden: A 24-Hour Golf Challenge to Support the Phelan-McDermid Syndrome Foundation
PHELAN LUCKY Sets Sights on $1 Million Goal

PHELAN LUCKY Sets Sights on $1 Million Goal

Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…

Continue ReadingPHELAN LUCKY Sets Sights on $1 Million Goal
Katy & Sue’s Birthday

Katy & Sue’s Birthday

We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…

Continue ReadingKaty & Sue’s Birthday
Phelan Lucky is open until 8/22/23

Phelan Lucky is open until 8/22/23

by: Jen Randolph, PMSF Member & Donation Coordinator and Creator of Phelan-Lucky. THE WAIT IS OVER! 🍀 DATES: July 31st thru…

Continue ReadingPhelan Lucky is open until 8/22/23
Team Matthew Luis – Dinner & Raffle Fundraiser

Team Matthew Luis – Dinner & Raffle Fundraiser

The Castillo family of Miami, FL held their 6th annual #teammatthewluis dinner and raffle fundraiser and raised over $18,000.00!

Continue ReadingTeam Matthew Luis – Dinner & Raffle Fundraiser
PMSF Raising Hope Through Movement

PMSF Raising Hope Through Movement

We are excited to launch our newest fundraiser, "Raising Hope Through Movement" to raise funds for PMSF May 22nd thru June 12th.

Continue ReadingPMSF Raising Hope Through Movement
Get Ready for St. Patrick’s Day with Phelan Lucky

Get Ready for St. Patrick’s Day with Phelan Lucky

Special thanks to Ronni Vestbie's family for this awesome Phelan Lucky photo! Friday, March 17th is St. Patrick's Day, the official…

Continue ReadingGet Ready for St. Patrick’s Day with Phelan Lucky
Family Fundraiser: Turner’s Tribe

Family Fundraiser: Turner’s Tribe

by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…

Continue ReadingFamily Fundraiser: Turner’s Tribe
Planting Seeds for the Future Summer 2021 Fundraiser

Planting Seeds for the Future Summer 2021 Fundraiser

By Shira JohnsonDirector of DevelopmentWe are excited to kick off our 2021 Planting the Seeds for Tomorrow Campaign!This year, we are…

Continue ReadingPlanting Seeds for the Future Summer 2021 Fundraiser

Contact Us

8 Sorrento Drive, Osprey, FL 34229

phone: 941-485-8000

fax: 941-220-6605

email: info@pmsf.org

Tax ID: 04-3673104

Engage With Us

  • News & Blog Posts
  • Resource Library
  • Events
  • Website Feedback
  • Join Our Membership

Connect With Us

Facebook-f Twitter Youtube Instagram

Translate

Financial Conflict of Interest

Privacy Policy

Charity Disclosures
Copyright © 2024 Phelan-McDermid Syndrome Foundation. All rights reserved. Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.

Log in

Become a part of our community!
Forgot your password? Get help

Reset password

Recover your password
A password reset link will be e-mailed to you.
Back to
Login
×
Close Panel

By continuing to use this website, you consent to the use of cookies in accordance with our Cookie Policy.

Accept