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Topics this month in the PMSF Research Roundup: Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial, Assessment tool adapted to be more specific to PMS to be used in a clinical trial.
Phelan-McDermid Syndrome Foundation is excited to announce that Carla D’Imperio, MS has accepted the position of Family Support Specialist. Join us in welcoming Carla to the team!
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research?The Research Roundup is a…
Results from a study testing the safety and feasibility of using growth hormone (GH) as a treatment in children with Phelan-McDermid syndrome has just been published.
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research? The Research Roundup is…
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research? The Research Roundup is…
The Natural History Study is funded by NIH and the goal is to help medical professionals study PMS and how it progresses over time. This information is essential for developing clinical guidelines, identifying research priorities, and assessing the effectiveness of the clinical intervention.
Results from a study testing the safety and feasibility of using growth hormone (GH) as a treatment in children with Phelan-McDermid syndrome has just been published.
Do you wonder how a research publication affects your loved one or the field of Phelan-McDermid research? The Research Roundup is…
This Phelan-McDermid Syndrome Foundation Travel Assistance Program is designed to assist patients and families with the cost of travel expenses associated with the clinical research study regarding a Phelan-McDermid syndrome diagnosis.
