Conference Archives - Page 2 of 3 - Phelan-McDermid Syndrome Foundation

2024 PMSF Family Conference Agenda

Join Us at the 2024 Phelan McDermid Syndrome Foundation Family Conference at the Radisson Blu at the Mall of America in Bloomington, MN, USA. You will find something for everyone in the Phelan-McDermid community! The conference will be attended by families, clinicians, researchers, therapists, and industry partners. The agenda is full of offerings in the three tracks titled CARE, CONNECT and CURE, ranging from research and science, clinical care and caregiver support topics that all help to improve the lives of those affected by Phelan-McDermid syndrome. There will be evening events, family outings, a sibling field trip, dance party, dinner, reception to help families and others connect. If you have questions, contact us at conference@pmsf.org

2024 PMSF Conference Family Packet

At the RADISSON BLU AT THE MALL OF AMERICA, BLOOMINGTON, MINNESOTA, USA, JULY 17-20, 2024: The PMSF Family Conference is three…

2024 Conference Sessions at a Glance

This event stands as the world's preeminent gathering for Phelan-McDermid families, offering a unique opportunity for direct networking and engaging with pioneering researchers, social interactions, and attending informative sessions with esteemed guest speakers to discuss the pressing concerns and challenges within our community.

2024 Phelan-McDermid Syndrome Conference

Join us at the Radisson Blu, Mall of America in Bloomington, MN, USA, from July 17-20, 2024. This contemporary hotel offers a seamless connection to a plethora of activities within the Mall of America, ensuring comfort and convenience, including indoor walking spaces, air conditioning, and complimentary airport shuttle services.

Conference Funding Resource Guide

Attending a conference requires a lot of planning and funds for families. Past attendees have told us that being at the conference is “life changing”. We hope you find resources to help you with your trip. These resources apply to the United States. If you know of other sources in the US or internationally that we can share, please contact us at conference@pmsf.org.

Bringing Everyone to the Table in 2018

PMSF initiated the Phelan-McPosium to bring families affected by PMS, clinicians, and researchers together to design patient-centered rigorous clinical and translational…

2018 International Conference

In 2018, families, researchers, clinicians, and individuals with PMS gathered for a 4-day conference in Dallas, TX. It was HOT, the…

Communication; 2016

Audrey Thurm, PhD presented on communication in individuals with PMS, in a talk entitled “Let’s Talk about More than Just Talking: Language, Communication, and Social Behavior in PMS”. This presentation provided an overview of important definitions as well as current literature on language, communication, and social communication in PMS.