This event stands as the world's preeminent gathering for Phelan-McDermid families, offering a unique opportunity for direct networking and engaging with pioneering researchers, social interactions, and attending informative sessions with esteemed guest speakers to discuss the pressing concerns and challenges within our community.
Join us at the Radisson Blu, Mall of America in Bloomington, MN, USA, from July 17-20, 2024. This contemporary hotel offers a seamless connection to a plethora of activities within the Mall of America, ensuring comfort and convenience, including indoor walking spaces, air conditioning, and complimentary airport shuttle services.
Attending a conference requires a lot of planning and funds for families. Past attendees have told us that being at the conference is “life changing”. We hope you find resources to help you with your trip. These resources apply to the United States. If you know of other sources in the US or internationally that we can share, please contact us at conference@pmsf.org.
PMSF initiated the Phelan-McPosium to bring families affected by PMS, clinicians, and researchers together to design patient-centered rigorous clinical and translational…
In 2018, families, researchers, clinicians, and individuals with PMS gathered for a 4-day conference in Dallas, TX. It was HOT, the…
Audrey Thurm, PhD presented on communication in individuals with PMS, in a talk entitled “Let’s Talk about More than Just Talking: Language, Communication, and Social Behavior in PMS”. This presentation provided an overview of important definitions as well as current literature on language, communication, and social communication in PMS.
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
About the PCORI funded, Patient Centered sessions at the 2016 Conference
Session recordings include topics on seizures, research priorities, adult life, physical therapy and more.
