Bringing Everyone to the Table in 2018
PMSF initiated the Phelan-McPosium to bring families affected by PMS, clinicians, and researchers together to design patient-centered rigorous clinical and translational…
Phelan-McDermid Syndrome Clinical Care Guidelines – English
The Clinical Care Guidelines infographic is a tool that can be used by patients to begin discussions with their own clinician. Please note that all cases of PMS are different and your doctor/clinician is the best resource to help you make clinical care decisions for your loved one.
Neuropsychiatric Pharmacological Recommendations (Spanish)
These PMS Pharmacological Recommendations were developed by the PMS_Neuropsychiatric Consultation Group (PMS_NCG). These algorithms describe treatment suggestions for PMS individuals who have PMS who also carry a diagnosis of ADHD, Sleep Disturbance, Irritability and Aggression, Mood Cycling, and/or Catatonia.