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  • CARE: About PMS
    • What is Phelan-McDermid Syndrome?
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    • PMS Neuropsychiatric Consultation Group – ECHO
    • Genetic Counselors
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  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
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      • Participation in Research
      • Clinical Trials in Phelan-McDermid Syndrome
    • Drugs In Development
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  • 2026 Conference
  • CONNECT: Family Support
    • New Diagnosis
    • Programs
      • Family Support
      • “First 100 Days”
      • Caregiver Support Groups
    • Family Stories
    • Wall of Remembrance
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid syndrome?
    • How PMS is Diagnosed
    • Medical Issues & Clinical Care
    • Phelan-McDermid Syndrome Clinics
    • PMS Neuropsychiatric Consultation Group – ECHO
    • About Genetic Counseling
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities 
      • Participation in Research
      • Clinical Trials
    • Drugs In Development
    • For Research Partners
    • PMS Datahub
  • Foundation
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2024 Conference Sessions at a Glance

2024 Conference Sessions at a Glance

This event stands as the world's preeminent gathering for Phelan-McDermid families, offering a unique  opportunity for direct networking and engaging with pioneering researchers, social interactions, and attending informative sessions with esteemed guest speakers to discuss the pressing concerns and challenges within our community.

Continue Reading2024 Conference Sessions at a Glance

2024 Phelan-McDermid Syndrome Conference

Join us at the Radisson Blu, Mall of America in Bloomington, MN, USA, from July 17-20, 2024. This contemporary hotel offers a seamless connection to a plethora of activities within the Mall of America, ensuring comfort and convenience, including indoor walking spaces, air conditioning, and complimentary airport shuttle services.

Continue Reading2024 Phelan-McDermid Syndrome Conference
Caregiver Mental Health Resources

Caregiver Mental Health Resources

Caring for emotional and physical health is critical for caregivers. These mental health support resource links were provided by Kiley Richards,…

Continue ReadingCaregiver Mental Health Resources
CANDID Video Resources

CANDID Video Resources

CANDID , Consortium for Autism, Neurodevelopmental Disorders & Digestive Diseases, was a collaboration between patient advocacy groups, scientists, clinicians, and research organizations that is focused on…

Continue ReadingCANDID Video Resources
2016 International Conference

2016 International Conference

Video recordings including topics on legal issues, service dogs, data networks, IEPs, and more.

Continue Reading2016 International Conference

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Copyright © 2024 Phelan-McDermid Syndrome Foundation. All rights reserved. Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.

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