Bringing Everyone to the Table in 2018
PMSF initiated the Phelan-McPosium to bring families affected by PMS, clinicians, and researchers together to design patient-centered rigorous clinical and translational…
2018 International Conference
In 2018, families, researchers, clinicians, and individuals with PMS gathered for a 4-day conference in Dallas, TX. It was HOT, the…
Genetics; 2016
A Patient Centered Outcomes Workshop Whitepaper by Lauren Schmitt, PhD & Geraldine Bliss, MS from the 2016 McPosium Sessions.
Gastrointestinal Issues in PMS; 2016
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
McPosium Background
About the PCORI funded, Patient Centered sessions at the 2016 Conference