You are not alone.

We are here to walk on this journey with you.

Welcome to the “First 100 Days” of your membership with the Phelan-McDermid Syndrome Foundation. We’re so glad you found us and we are here to support you on your journey with this rare diagnosis.

Watch this brief welcome video and scroll down below for links to register for our “First 100 Days” Zoom meetings and webinars. Please note that the “First 100 Days” program is for new members in the United States only.

Questions?  Please email our Director of Family Support, Carla D’Imperio, at carla@pmsf.org 

Join our series of three Zoom sessions for new families:

Please join, Carla D’Imperio, Director of Family Support, for a series of three monthly Zoom meetings with others who have recently joined our membership. During the first 90-minute Zoom session, we will share our stories and begin building community with other newly diagnosed families as well as gathering a list of questions. Our Director of Family Support will start to answer your questions as the group begins to explore Phelan-McDermid syndrome resources together.

Here are the upcoming session dates (please register for ALL THREE Zooms):

Watch our New Family Webinar:

Our New Member Webinar is a recorded session that covers a lot of the information that is shared in our live Zoom meetings, but without the interaction with our Director of Family Support and other new families. If you are not able to commit to a series of three 90-minute Zooms or if you would like to review material covered in the live Zoom sessions, please watch the webinar recording. You will learn  more about about Phelan-McDermid syndrome and take a tour of our online resources. Please email any questions you have to carla@pmsf.org.

Still need help?

If you would prefer to meet with our Director of Family Support one-on-one, please click here to schedule a time to meet or send her an email at carla@pmsf.org.