Leadership
The Phelan-McDermid Syndrome Foundation (PMSF) has assembled an exceptional leadership team to set and facilitate the attainment of our strategic goals.
Board of Directors
Denise Croden
President, Director
Lisa Brown
Vice President, DirectorChris Jauch
Treasurer, Director
Alycia Halladay
Secretary, Past President, DirectorEden Rivera
Director
Catherine (Cat) Valcourt-Pearce
Director
Foundation Operations
Founders
Susan Lomas
Past President, Co-FounderNick Assendelft
Past Vice President, Co-Founder
Katy Phelan, MD
Past Director, Co-Founder
Curtis Rogers, MD
Chairman Emeritus, Co-Founder
Scientific Advisory Committee
William Bennett, Jr, MD, MS
Indiana University School of Medicine / Indiana University Health Physicians/ PMS Parent Advocate
Luigi Boccuto, MD
Clemson University
Thomas Bourgeron, PhD
Université de Paris / Institut Pasteur
Sheldon Garrison, PhD
Aurora Health Research Institute
Eva Loth, PhD
King’s College London
Katy Phelan, PhD
Florida Cancer Specialists
Carlo Sala, MD, PhD
CNR Neuroscience Institute
Michael Schön, MD
Ulm University
Alex Shcheglovitov, PhD
University of Utah
Audrey Thurm, PhD
NIMH
Chiara Verpelli PhD
CNR Neuroscience Institute
Chris Winrow, PhD
CSO – Lucy Therapeutics/ PMS Parent Advocate
Medical Advisory Committee
William Bennett, Jr, MD, MS
Indiana University School of Medicine / Indiana University Health Physicians/ PMS parent advocate
Elizabeth Berry-Kravis, MD, PhD
Rush University Medical Center
Tesi Kohlenberg, MD
Assistant Professor, University of Massachusetts Medical School /PMS parent advocate
Alex Kolevzon, MD
Icahn School of Medicine at Mount Sinai
Ann Neumeyer, MD
Lurie Center for Autism at Massachusetts General Hospital / Harvard Medical School
Curtis Rogers, MD
Greenwood Genetic Center