This page is your source for all of the latest news and blog posts about Phelan-McDermid syndrome (PMS).
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This was written by PMSF to provide a summary of information in an accessible way for parents. PMSF does not speak on behalf of clinical
We are excited to release updates to our Pharmacologic Recommendations, which were recently finalized by our Phelan-McDermid Syndrome Neuropsychiatric Consultation Group (PMS-NCG). The Pharmacological Recommendations
Name: Denise Croden Time Served on the Board: Since June 2021 Board Role: President Denise’s journey with PMSF began as an extension of her volunteer
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings from the 2024 PMSF
At the Phelan-McDermid Syndrome Foundation, we are committed to making resources accessible to all families in our community. That’s why we’re excited to announce that
A Message from Our CEO: Preparing for a New Chapter It is with both gratitude and a sense of celebration that we share the news
Important Links: Updated Community Letter & FAQ from Jaguar Gene Therapy (11/5/24) Updated information is highlighted in blue JAG201 Clinical Study Record on ClinicalTrials.gov Jaguar’s
After a very rigorous process with several excellent candidates, we are very excited to welcome Dr. Lauren Schmitt to the PMSF team as our Chief
In January 2023, PMSF launched its research grants program to fund highly motivated scientists studying Phelan-McDermid syndrome. Our goal was to accelerate promising clinical research
Jaguar Gene Therapy to Initiate Inaugural Pediatric Clinical Trial Targeting Phelan-McDermid syndrome
We are excited to announce the upcoming Endure4Eden fundraiser, organized by Philip Robertson and his team, to support the Phelan-McDermid Syndrome Foundation. Taking place on
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