From Awareness to Action: Advocacy for Our Phelan-McDermid Syndrome Community
This is a companion piece to our podcast episode, which we recommend listening to or viewing before reading! But if you…
Breaking Down NIH Funding for Research
With a past annual budget of nearly $50 billion (yes, that’s with a B!), the National Institute of Health (NIH) is…
Welcoming Dr. Lauren Schmitt, PMSF’s New Chief Science Officer
After a very rigorous process with several excellent candidates, we are very excited to welcome Dr. Lauren Schmitt to the PMSF…
Katy & Sue’s Birthday
We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…
BIO Rare Disease Summit
BIO Rare Disease Summit by Tony Samuel The 2019 BIO Patient & Health Advocacy Summit in Washington D.C. brings together academia,…
Bio Patient & Health Advocacy
By Tony Samuel, Father to Nadia Bio Patient & Health Advocacy Summit 2018 The 7th annual Bio Patient & Health Advocacy Summit…