Rare Disease Day 2026: Raising Awareness for Phelan-McDermid Syndrome
By: Meagan Hutchinson, Science & Research Administrator, PMSFFebruary 5, 2026Every year on the last day of February, the global rare disease…
Because no family should walk this path alone
Giving Tuesday is December 2nd and we have some exciting news!
We surpassed our Giving Tuesday match and raised $77K (exact total to be posted later). We ope you feel the appreciation…
November is Epilepsy Awareness Month
Epilepsy is one of the most common neurological disorders, impacting millions worldwide, including many in the Phelan-McDermid syndrome community. Approximately 50%…
Phelan Lucky 2022 Is Here!
Phelan Lucky 2022 is an online campaign that takes place for a strict 22-day period—from Jan. 2, 2022, through Jan. 24, 2022! It’s also the only time of year to get your hands on the coveted “Phelan Lucky” T-shirt.
Phelan-Lucky 2021
This year was the largest and most successful campaign that we have had to date.As February draws to a close, the…