Skip to content
  • 2026 Conference
  • CAREGIVER SUPPORT
  • QUICK RESOURCES
  • PODCAST
  • CONNECT: Family Support
    • New Diagnosis
    • Support Programs
      • Family Support
      • First 100 Days
      • Caregiver Support Groups
    • 2026 Conference
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid Syndrome?
    • How Phelan-McDermid Syndrome is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • Genetic Counselors
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities
      • Participation in Research
      • Clinical Trials in Phelan-McDermid Syndrome
    • Drugs In Development
    • For Research Partners
    • PMS DataHub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
  • Get Involved
    • Fundraise
    • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • News & Updates
  • Contact Us
  • CONNECT: Family Support
    • New Diagnosis
    • Support Programs
      • Family Support
      • First 100 Days
      • Caregiver Support Groups
    • 2026 Conference
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid Syndrome?
    • How Phelan-McDermid Syndrome is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • Genetic Counselors
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities
      • Participation in Research
      • Clinical Trials in Phelan-McDermid Syndrome
    • Drugs In Development
    • For Research Partners
    • PMS DataHub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
  • Get Involved
    • Fundraise
    • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • News & Updates
  • Contact Us
Join
Donate
  • 2026 Conference
  • CONNECT: Family Support
    • New Diagnosis
    • Programs
      • Family Support
      • “First 100 Days”
      • Caregiver Support Groups
    • Family Stories
    • Resource Library
  • CARE: About PMS
    • What is Phelan-McDermid syndrome?
    • How PMS is Diagnosed
    • Medical Issues & Clinical Care
    • PMS Neuropsychiatric Consultation Group – ECHO
    • About Genetic Counseling
    • PMS By The Numbers
  • CURE: Research
    • Strategic Priorities
    • Funded Research
      • Research Grants Program
    • Family Participation Opportunities 
      • Participation in Research
      • Clinical Trials
    • Drugs In Development
    • For Research Partners
    • PMS Datahub
  • Foundation
    • About Us
    • Our History
    • Leadership
    • Our Financials
    • PMSF News
    • Contact Us
  • Get Involved
    • Fundraise
      • Phelan Lucky
    • Advocate
    • Events
    • Volunteer
  • Join
  • Donate
Neuropsychiatric Support Group Registration

Neuropsychiatric Support Group Registration

Registration is open for our third support group topic, Coping With Neuropsychiatric Episodes. This support group will be open only to those caregivers in our community who have lost a child or adult with Phelan-McDermid syndrome.

Continue ReadingNeuropsychiatric Support Group Registration
Grief Support Group Registration

Grief Support Group Registration

Registration is open for our first Phelan-McDermid Caregiver Support Group. We are thrilled to invite you to register for our new Caregiver Support Groups. These groups will be a time for Phelan-McDermid syndrome caregivers to share their experience in a welcoming and supportive group setting.

Continue ReadingGrief Support Group Registration
Living a Life of Rarity

Living a Life of Rarity

Spotlight on Living with Phelan-McDermid syndrome.Many of our parents have chosen to express their truth through words and images on websites…

Continue ReadingLiving a Life of Rarity
Grit and Grace

Grit and Grace

PMS mom and PMSF Regional REP, Jenn Carter, is creating an adventurous life with her family and sharing the raw truth…

Continue ReadingGrit and Grace

Contact Us

8 Sorrento Drive, Osprey, FL 34229

phone: 941-485-8000

fax: 941-220-6605

email: info@pmsf.org

Tax ID: 04-3673104

Engage With Us

  • News & Blog Posts
  • Resource Library
  • Events
  • Website Feedback
  • Join Our Membership

Connect With Us

Facebook-f Twitter Youtube Instagram

Translate

Financial Conflict of Interest

Privacy Policy

Charity Disclosures
Copyright © 2024 Phelan-McDermid Syndrome Foundation. All rights reserved. Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.

Log in

Become a part of our community!
Forgot your password? Get help

Reset password

Recover your password
A password reset link will be e-mailed to you.
Back to
Login
×
Close Panel

By continuing to use this website, you consent to the use of cookies in accordance with our Cookie Policy.

Accept