Endure4Eden: A 24-Hour Golf Challenge to Support the Phelan-McDermid Syndrome Foundation
We are excited to announce the upcoming Endure4Eden fundraiser, organized by Philip Robertson and his team, to support the Phelan-McDermid Syndrome…
PHELAN LUCKY Sets Sights on $1 Million Goal
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
Katy & Sue’s Birthday
We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…
Team Matthew Luis – Dinner & Raffle Fundraiser
The Castillo family of Miami, FL held their 6th annual #teammatthewluis dinner and raffle fundraiser and raised over $18,000.00!
Family Fundraiser: Turner’s Tribe
by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…
Phelan Lucky 2022 Is Here!
Phelan Lucky 2022 is an online campaign that takes place for a strict 22-day period—from Jan. 2, 2022, through Jan. 24, 2022! It’s also the only time of year to get your hands on the coveted “Phelan Lucky” T-shirt.
Turner’s Tribe
We received Turner's diagnosis in June of 2019. He was 6 years old, and to say we were devastated at first…
Cecilia’s Advice
Cecilia’s Advice was born out of that deep commitment to fostering research and family support for the thousands of families worldwide affected by PMS.
TeamMatthewLuis
#TeamMatthewLuis When our sweet and beautiful five year old son, Matthew Luis Castillo, was diagnosed with Phelan McDermid Syndrome it was…
Hope for 22q13 Gala
When our son Anthony was diagnosed back in July of 2015 at the age of 15 months, we were, as all…