A Year-End Gift: 2024 PMSF Family Conference Recordings Now Available
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…
Exciting News: The Phelan-McDermid Syndrome DataHub is Now Available in Spanish!
At the Phelan-McDermid Syndrome Foundation, we are committed to making resources accessible to all families in our community. That’s why we’re…
Pathways Education Series
Please join us for our new Pathways Education Series of monthly webinars in 2025.
November is Epilepsy Awareness Month
Epilepsy is one of the most common neurological disorders, impacting millions worldwide, including many in the Phelan-McDermid syndrome community. Approximately 50%…
PMSF 2024 Grant Award Recipients
In January 2023, PMSF launched its research grants program to fund highly motivated scientists studying Phelan-McDermid syndrome. Our goal was to…
“First 100 Days”
Welcome to the “First 100 Days of your membership with the Phelan-McDermid Syndrome Foundation.
Caregiver Support Groups
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Winter Break Solutions
by: Carla D'Imperio, Director of Family Support.We gathered your ideas to help make the most of breaks from school and programs.We…
PHELAN LUCKY Sets Sights on $1 Million Goal
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
Katy & Sue’s Birthday
We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…