Raising Hope Through Movement 2025
We’re on the move—are you with us?From May 13–25, 2025, the Phelan-McDermid Syndrome Foundation (PMSF) is launching our second Raising Hope…
PMSF 2024 Grant Award Recipients
In January 2023, PMSF launched its research grants program to fund highly motivated scientists studying Phelan-McDermid syndrome. Our goal was to…
Endure4Eden: A 24-Hour Golf Challenge to Support the Phelan-McDermid Syndrome Foundation
We are excited to announce the upcoming Endure4Eden fundraiser, organized by Philip Robertson and his team, to support the Phelan-McDermid Syndrome…
PHELAN LUCKY Sets Sights on $1 Million Goal
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
Katy & Sue’s Birthday
We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…
How are Phelan-McDermid Syndrome and Autism Related?
A large percentage (~75-80%) of people with a Phelan-McDermid syndrome diagnosis also have a diagnosis of autism spectrum disorder. This article…
SHANK3 in Phelan-McDermid syndrome
What is SHANK3? SHANK3 is a gene that is important for the development and function of the nervous system. Genes are…
PMSF 2023 Grant Award Recipients
PMSF announced a research grants program in January 2023 to provide funding to highly motivated scientists studying Phelan-McDermid syndrome. Our goal…
Team Matthew Luis – Dinner & Raffle Fundraiser
The Castillo family of Miami, FL held their 6th annual #teammatthewluis dinner and raffle fundraiser and raised over $18,000.00!
Get Ready for St. Patrick’s Day with Phelan Lucky
Special thanks to Ronni Vestbie's family for this awesome Phelan Lucky photo! Friday, March 17th is St. Patrick's Day, the official…