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Team Matthew Luis – Dinner & Raffle Fundraiser

Team Matthew Luis – Dinner & Raffle Fundraiser

The Castillo family of Miami, FL held their 6th annual #teammatthewluis dinner and raffle fundraiser and raised over $18,000.00!

Continue ReadingTeam Matthew Luis – Dinner & Raffle Fundraiser
Get Ready for St. Patrick’s Day with Phelan Lucky

Get Ready for St. Patrick’s Day with Phelan Lucky

Special thanks to Ronni Vestbie's family for this awesome Phelan Lucky photo! Friday, March 17th is St. Patrick's Day, the official…

Continue ReadingGet Ready for St. Patrick’s Day with Phelan Lucky
Family Fundraiser: Turner’s Tribe

Family Fundraiser: Turner’s Tribe

by Brooke Turner Jones, Mom to TurnerWe are excited about the prospects of PMS Awareness Day 2023, as it will be…

Continue ReadingFamily Fundraiser: Turner’s Tribe
Phelan Lucky 2022 Is Here!

Phelan Lucky 2022 Is Here!

Phelan Lucky 2022 is an online campaign that takes place for a strict 22-day period—from Jan. 2, 2022, through Jan. 24, 2022! It’s also the only time of year to get your hands on the coveted “Phelan Lucky” T-shirt.

Continue ReadingPhelan Lucky 2022 Is Here!
Shannon’s Birthday

Shannon’s Birthday

Happy 21st B-Day Shannon!Dear Friends and Family,As impossible as it seems, we are celebrating Shannon’s 21st birthday this month. In honor…

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TeamMatthewLuis

TeamMatthewLuis

#TeamMatthewLuis When our sweet and beautiful five year old son, Matthew Luis Castillo, was diagnosed with Phelan McDermid Syndrome it was…

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Phelan-Lucky 2021

Phelan-Lucky 2021

This year was the largest and most successful campaign that we have had to date.As February draws to a close, the…

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Hope for 22q13 Gala

Hope for 22q13 Gala

When our son Anthony was diagnosed back in July of 2015 at the age of 15 months, we were, as all…

Continue ReadingHope for 22q13 Gala
Annie’s Golf Classic

Annie’s Golf Classic

Annie’s Golf Classic is a charity golf tournament that is held in the Dallas Ft. Worth area. Net proceeds of the…

Continue ReadingAnnie’s Golf Classic
Pie in the Face for Chase

Pie in the Face for Chase

The idea for our Pie in the Face for Chase event was born during the time that ALS ice bucket challenge…

Continue ReadingPie in the Face for Chase
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Copyright © 2024 Phelan-McDermid Syndrome Foundation. All rights reserved. Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.

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