There is often something therapeutic about contributing to a great cause to help drive change and conquer what can seem insurmountable. We have witnessed the power of the passion of our community through advocacy events, sharing stories, creating fundraising events and just being present for one another. 

The Phelan-McDermid Syndrome Foundation (PMSF ) is growing quickly and there are new projects and initiatives throughout the year. There are many ways you can volunteer your time and skills to help and a few examples are provided below. We welcome volunteers from around the world. Our office staff works with families, volunteers, the Board of Directors, researchers and other stakeholders to accomplish our goals.