Welcome Robbie Baker: Getting to Know PMSF’s New CEO

By: Amanda Bergen, Director of Communications, PMSF

February 16, 2026

We are excited to officially welcome Robbie Baker as the new Chief Executive Officer of the Phelan-McDermid Syndrome Foundation.

As Robbie begins his time with PMSF, he’s focused on listening, learning, and getting to know our incredible community. To start, we sat down with him for a short, lighthearted “get to know you” conversation, a chance for families, supporters, and partners to meet Robbie beyond his title.

Robbie brings decades of experience in nonprofit leadership and patient advocacy, but just as importantly, he brings a genuine curiosity and care for the communities he serves.

As Board Secretary, Lisa Brown shared:

“Robbie proves that patience pays off! He embodies the skills, experience, and motivation that will accelerate PMSF growth across our strategic focus areas of Connect, Care, and Cure. The PMSF community is extremely fortunate to have Robbie at the helm of navigating a brighter future for us!”

Watch the video below to meet Robbie and learn a little more about who he is as he begins this new chapter with PMSF.

We’re so glad he’s here — welcome, Robbie!