Clinic and Research Visit Ready: New PMSF Resources for Families
By Lauren Schmitt, PhDDate February 25, 2026Everyday, our families are taking their loved ones to clinic appointments, research visits, or under…
SPACES Webinar Series Recap: Understanding Catatonia in Autism
SPACES Webinar Series Recap: Understanding Catatonia in Autism By Meagan HutchinsonPhelan-McDermid Syndrome Foundation proudly co-sponsored the six-part "Supporting People with Autism…
Protected: Family Gathering Ideas
Are you interested in taking the lead on planning a get-together for Phelan-McDermid syndrome families in your area of the United States? If you have an idea for a family gathering and you would like to plan it with support from our team, please fill out the form below and our Director of Family Support will reach out to you to help you get started.
Breaking Down NIH Funding for Research
With a past annual budget of nearly $50 billion (yes, that’s with a B!), the National Institute of Health (NIH) is…
Epilepsy and Seizure Update from the Natural History Study
Seizures are a big concern for families with children with Phelan-McDermid syndrome, but it's not always clear when or why they…
A Pilot Study Investigates a New Potential Treatment for Seizures in Phelan-McDermid Syndrome
This was written by PMSF to provide a summary of information in an accessible way for parents. PMSF does not speak…
Phelan-McDermid Syndrome 101
Quick links to important information for families and clinicians about neuropsychiatric regression in PMS.
Updates to Pharmacological Recommendations for the Management of Phelan-McDermid syndrome
We are excited to release updates to our Pharmacologic Recommendations, which were recently finalized by our Phelan-McDermid Syndrome Neuropsychiatric Consultation Group…
A Year-End Gift: 2024 PMSF Family Conference Recordings Now Available
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…
Exciting News: The Phelan-McDermid Syndrome DataHub is Now Available in Spanish!
At the Phelan-McDermid Syndrome Foundation, we are committed to making resources accessible to all families in our community. That’s why we’re…