In July 2026, we are honored to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community. Over four powerful days on July 15–19, 2026, 700 attendees will come together with leading researchers, clinicians, industry partners, and advocates to learn, collaborate, and drive medical advancements fueling hope for our families.
From: Alex Kolevzon, MD, PMS MAC chairperson; William Bennett, Jr , MD, MS; Elizabeth Berry-Kravis, MD, PhD; Ann Neumeyer , MD;…
A synopsis of the 2024 PMSF Family Conference in the words of Michael Schön, MD, Institute for Anatomy and Cell Biology, Ulm University. This summary was created first in German for the German Phelan-McDermid community, then translated to english. It summarizes the speaker presentations as well as the family and community sessions.
Use these maps to help you navigate the Radisson Blu conference center and the Mall of America. There are also signs in and around the Radisson and the Mall.
Traveling is daunting for anyone, but especially when you are traveling as a family that includes someone diagnosed with Phelan-McDermid syndrome! From packing reminders, hotel information, phone numbers, and maps - this guide will help you with your planning.
Getting ready to attend the conference. Use our handy checklist to plan your packing.
Learn more about the session topics in the 2024 Phelan-McDermid Syndrome Foundation (PMSF) Family Conference agenda. These sessions range from research discoveries, research studies, medical care guidelines and a myriad of topics about living with Phelan-McDermid syndrome.
Join us VIRTUALLY at the 2024 Phelan McDermid Syndrome Foundation Family Conference. Livestream is the next best thing to being there! The agenda is full of offerings in the three tracks titled CARE, CONNECT and CURE, ranging from research and science, clinical care and caregiver support topics that all help to improve the lives of those affected by Phelan-McDermid syndrome. If you have questions, contact us at conference@pmsf.org.
At the Phelan-McDermid Family Conference, you will find something for everyone in the family. This guide outlines recommendations for places to…
We are thrilled to offer a variety of activities and events for our community at this year’s conference. There is a ton to do at the Mall of America and we want you to take full advantage! Please note that we will close discount ticket sales when Early Bird registration ends onMay31. After this, you may buy tickets from the vendors directly at full price and you may plan to go on your own. We will be planning our chaperones ahead of time, so we will not be able to provide chaperones if you purchase your tickets after May 31 at full price.
