About Phelan-McDermid Syndrome – One Page Summary
This one-page information sheet provides a brief overview of Phelan-McDermid syndrome, including its genetics, symptoms, treatments, and how the Phelan-McDermid Syndrome…
Know Before You Go
Traveling is daunting for anyone, but especially when you are traveling as a family that includes someone diagnosed with Phelan-McDermid syndrome! From packing reminders, hotel information, phone numbers, and maps - this guide will help you with your planning.
Conference Know Before You Go
Getting ready to attend the conference. Use our handy checklist to plan your packing.
Conference Session Descriptions
Learn more about the session topics in the 2024 Phelan-McDermid Syndrome Foundation (PMSF) Family Conference agenda. These sessions range from research discoveries, research studies, medical care guidelines and a myriad of topics about living with Phelan-McDermid syndrome.
2024 PMSF Virtual Family Conference Agenda
Join us VIRTUALLY at the 2024 Phelan McDermid Syndrome Foundation Family Conference. Livestream is the next best thing to being there! The agenda is full of offerings in the three tracks titled CARE, CONNECT and CURE, ranging from research and science, clinical care and caregiver support topics that all help to improve the lives of those affected by Phelan-McDermid syndrome. If you have questions, contact us at conference@pmsf.org.
Events, Activities, and Places to Go
At the Phelan-McDermid Family Conference, you will find something for everyone in the family. This guide outlines recommendations for places to…
Conference Events and Activities
We are thrilled to offer a variety of activities and events for our community at this year’s conference. There is a ton to do at the Mall of America and we want you to take full advantage! Please note that we will close discount ticket sales when Early Bird registration ends onMay31. After this, you may buy tickets from the vendors directly at full price and you may plan to go on your own. We will be planning our chaperones ahead of time, so we will not be able to provide chaperones if you purchase your tickets after May 31 at full price.
Medical Advisory: Understanding Mortality in Phelan-McDermid Syndrome
The Phelan-McDermid syndrome community has experienced profound grief and concern over the deaths of some of our beloved children and adults.…
2024 PMSF Family Conference Agenda
Join Us at the 2024 Phelan McDermid Syndrome Foundation Family Conference at the Radisson Blu at the Mall of America in Bloomington, MN, USA. You will find something for everyone in the Phelan-McDermid community! The conference will be attended by families, clinicians, researchers, therapists, and industry partners. The agenda is full of offerings in the three tracks titled CARE, CONNECT and CURE, ranging from research and science, clinical care and caregiver support topics that all help to improve the lives of those affected by Phelan-McDermid syndrome. There will be evening events, family outings, a sibling field trip, dance party, dinner, reception to help families and others connect. If you have questions, contact us at conference@pmsf.org
2024 PMSF Conference Family Packet
At the RADISSON BLU AT THE MALL OF AMERICA, BLOOMINGTON, MINNESOTA, USA, JULY 17-20, 2024: The PMSF Family Conference is three…