Bringing Everyone to the Table in 2018
PMSF initiated the Phelan-McPosium to bring families affected by PMS, clinicians, and researchers together to design patient-centered rigorous clinical and translational…
Genetics; 2016
A Patient Centered Outcomes Workshop Whitepaper by Lauren Schmitt, PhD & Geraldine Bliss, MS from the 2016 McPosium Sessions.
Gastrointestinal Issues in PMS; 2016
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
Communication; 2016
Audrey Thurm, PhD presented on communication in individuals with PMS, in a talk entitled “Let’s Talk about More than Just Talking: Language, Communication, and Social Behavior in PMS”. This presentation provided an overview of important definitions as well as current literature on language, communication, and social communication in PMS.
Epilepsy; 2016
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
Cognitive; 2016
A white paper based on the 2016 McPosium presenation titled, "Cognitive Issues in PMS" presented by
McPosium Background
About the PCORI funded, Patient Centered sessions at the 2016 Conference