Amanda Bergen – Region 1 South: California, Hawaii & Nevada

Amanda lives in Santa Clarita, California with her husband, Bill, and their two beautiful children, Hudson and Sullivan. Hudson is her seven-year-old daughter with PMS who got her diagnosis in 2017. Maybe you already know Amanda as she is very active in the PMSF world. She has recently helped with leading some of our 2022 Virtual Conference sessions and has been a warm and welcoming presence for our families. She has been involved with the PMSF Development Committee and has a professional background in team leadership and operations. Amanda is an advocate for individuals with PMS and she is looking forward to strengthening the community of Region 1 South.

Lacy Biram – Arkansas

Lacy and her husband, Davin, have four children that keep them busy. Casen is 18 and is a freshman at Arkansas Tech, Hudson is 16 and on his high school cheer team, Steely is 11 and in sixth grade, and Avenly is Lacy’s nine-year-old daughter with PMS. Avenly has a sweet service dog named Mercy. Many of you know Lacy as she is very active in the PMSF world and has been helping with Arkansas family support. She shares so much about Avenly’s story and is passionate about supporting families through all of the emotions that come with this diagnosis. Lacy is well-versed in doctors, therapies, and available resources in the state of Arkansas.

Trisha Hunter – Georgia
Trisha lives in Woodstock, Georgia with her husband and three children, the youngest of whom just went off to college. Their middle child, Brayton, is 25-years-old and has PMS. He was diagnosed five years ago. Trish is active in our PMSF community advocating for the needs of our children with PMS. She is involved with her local church and leverages that connection as a way to provide opportunities for people with disabilities. Trish has a vision of connecting the state of Georgia as an active community of almost 30 PMS families.

Devin Wilber – Florida
Devin lives in Orlando, FL and has two beautiful children, Dean (age nine) and Lorelai (age five). Lorelai has PMS and received her diagnosis right before she turned two. Maybe you already know Devin as she is active in the PMSF world. She is currently working on our PMS Awareness Day project and is always looking for additional ways to help. In her own words, “In addition to being a coordinator of chaos in my own home, I have my own photography business and love photographing families and weddings. I have big golden retriever energy and can’t wait to be the new family REP!”

Chrissy Hood – Tennessee
Chrissy and her husband have three daughters, two sons-in-law, and they reside in Pulaski, Tennessee. Their youngest daughter, Alaina, is 19 years old and has Phelan-McDermid Syndrome. Chrissy is passionate about helping families with disabilities, educating others, and advocating for those with disabilities. She is a Governor-appointed member of the Tennessee Council on Developmental Disabilities, the Co-Chapter Chair for Changing Spaces Tennessee, a 2020 graduate of the Vanderbilt Volunteer Advocacy Program, and a 2022 graduate of Partners in Policymaking, She founded and is the chair of Connecting the Journey: Special Needs Support Group where she walks with families on their journey and has put on various resource fairs and workshops for individuals with disabilities and their families in her rural area. The list of her family support and advocacy endeavors goes on and on. I know she will be an incredible resource to our almost 20 Tennessee families.

Carrie Proffitt – Kansas
Carrie lives in Olathe with her husband of 20 years, Chris, and their two biological children, Hunter and Ryder, as well as their foster children. Carrie and Chris have fostered over 30 children over the course of 18 years! Ryder is Carrie’s son with PMS and he is 14-years-old. Carrie has been an advocate for people with special abilities for over fifteen years and she is excited to help other families with their journeys in Kansas.

Amy McCloskey – New York
Amy is a mom, wife, and educator. She lives in Western New York state with her husband Patrick, daughter Abby, and son Taylor. Taylor was diagnosed with Phelan-McDermid Syndrome in July 2021 at six-years-old after many years of searching for a “why” for him. Professionally, Amy has worked as a teacher and school administrator for over 20 years. Currently, she is the Director of Pupil Services at a local public school where she oversees special education in the district. Amy is passionate about educating, advocating, and helping others!

Anna Williams – Maryland
Anna Williams resides in southern Maryland with her husband and her seven-year-old twins, Lily and Levi. Lily was diagnosed with PMS in 2018. She has numerous medical diagnoses including epilepsy, autism, and ID, but she never lets that stop her! She is a kind, affectionate and persistent child who refuses to accept the limitations placed upon her. Anna has spent the last three years advocating for Lily in educational, medical and disability assistance systems and enjoys helping other families do the same.